Patient Engagement Shapes Digital Health Ecosystem
A 2025 perspective paper led by Patient Focused Medicines Development and academic partners reports findings from the Stakeholder Expectations Matrix program, based on 37 in-depth interviews across six stakeholder groups and a multisession cocreation track at the Patient Engagement Open Forum. It identifies fragmented data governance, inconsistent patient engagement practices, and barriers to technology adoption, and recommends early, inclusive co-creation, shared language, and governance reforms to build trust, interoperability, and sustainable patient-centered digital health.
Key Points
- 1Document reports 37 in-depth interviews across six stakeholder groups and PEOF cocreation sessions.
- 2Highlights fragmented data governance and inconsistent PE practices that hinder adoption and sustainability.
- 3Urges early patient co-creation, shared language, and governance reforms to improve trust and interoperability.
Scoring Rationale
Peer-reviewed perspective offers practical, credible recommendations; limited sample size and qualitative scope reduce broad generalizability.
Sources
Public references used for this report.
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